PATIENT STORIES

Grace Harper was a healthy, outgoing 5-year-old

She suddenly began having unexplained fits of rage and OCD behaviors so severe that she was suspended from kindergarten.

Grace’s Story

Grace was suspended from kindergarten and diagnosed with various mental disorders. Her parents spent their life savings searching for answers.

WATCH VIDEO: GRACE’S STORY


Mom:
Come unlock the door. [child screaming]

Grace was diagnosed with ADHD, Oppositional Defiant Disorder, and other childhood mental disorders. She didn’t have any of them.

Mom:
She was getting these fevers. She’d get a fever and she would be really sick. But as soon as she was done being sick and the fever would be gone, her behavior would be atrocious.

Grace:
My name is Grace and I'm 8-years-old and I love to play with my parents.

Mom:
She's a people person, a chatterbox, loves to be the center of attention. Even as early as 6 months you could tell she had a sense of humor.

I'll never forget when we got the email that had the results of the Cunningham Panel. Yes, this means this is what she has. We finally know what she has. We could stop searching.

Grace’s parents began searching for answers.

Mom:
She didn't have Lupus. She didn't have Rheumatoid arthritis. She didn't have Bartonella. She didn't have Lyme. She didn't have cat scratch fever.  Well, maybe she's allergic to the pets. So we got rid of some pets. Maybe there's mold in the house. We tore out our carpets.

She missed, I think I counted 55, 57 days of kindergarten. And she's got a couple friends but it is difficult for her in that area.

Grace:
I got suspended because I wouldn't let a child get off the bus. I didn't want anyone to sit by me and I didn't want anyone going anywhere. I just felt that way.

Mom:
The doctors we were seeing were trying the best they could but they couldn't find an answer. The test results weren't showing answers. We just kept on searching.

Mom:
What are you doing?

Grace:
Killing myself [rolling around on floor]

Grace’s parents emptied their 401K twice looking for answers. They spent everything they had. And found nothing. [Grace is referred to an immunologist.]

Mom:
We get her in. We do the blood work, get an appointment, get in, sit down with the immunologist. All this stuff she thought it could be and nothing, except she ordered an ASO titer which is a strep titer. The only thing that has any reading and it's really high. I mean it's ridiculously high and she asked, "She didn't have any behavior issues does she?" And we're like “Yes, she does.”

She said the only thing I think that it might be is PANDAS. She said, "Let's order the Cunningham Panel."

I'll never forget when we got the email that had the results of the Cunningham Panel. Yes, this means this is what she has. We finally know what she has. We could stop searching.

Grace:
Once we started the new med, it changed and helped me and I love it. I'm getting better.

Mom:
She has a lot more happy days. A lot more good days than there are bad days. Now, if she does get sick, we're able to work with her providers, and make whatever adjustments are needed.

Grace:

I wish that the people that have PANDAS like me get better.

Mom:
We've got the tools. Let's use them.

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  • Test Order Process
    The Cunningham Panel™ – Antibody testing that helps determine whether an autoimmune response may be triggering neurologic and/or psychiatric symptoms.

B. Robert Mozayeni, MD

Medical and Clinical Advisor

B. Robert Mozayeni MD

Dr. B. Robert Mozayeni was trained in Internal Medicine and Rheumatology at Yale and at NIH. He has had pre- and post-doctoral Fellowships in Molecular Biophysics and Biochemistry at Yale, and also at NIH where he was a Howard Hughes Research Scholar at LMB/DCBD/NCI and later, Senior Staff Fellow at LMMB/NHLBI/NIH. Editorial board of Infectious Diseases – Surveillance, Prevention and Treatment. Past President of the International Lyme and Associated Diseases Society (ILADS).

He is an expert in Translational Medicine, the science and art of advancing medical science safely and efficiently. He is a Fellow of the non-profit Think Lead Innovate Foundation and is a co-founder of the Foundation for the Study of Inflammatory Diseases. He is a Founder of the Foundation for the Study of Inflammatory Diseases to crowd-source medical solutions for complex conditions using existing knowledge, diagnostic methods, and therapies to meet patient needs immediately. He is the Chief Medical Officer of Galaxy Diagnostics, LLC. He is a Board member of the Human-Kind Alliance. Dr. Mozayeni has held admitting privileges (since 1994) on the clinical staff of Suburban Hospital, a member of Johns Hopkins Medicine and an affiliate of the National Institutes of Health Clinical Center.

Safedin Sajo Beqaj, PhD, HCLD, CC (ABB)

Moleculera Labs, Clinical Laboratory Advisor
Medical Database, Inc., President and CEO

Sajo Baqaj, PhD

Dr. Sajo Beqaj is board certified in molecular pathology and genetics and licensed as a Bioanalyst and High Complexity Laboratory Director. He has been practicing as a laboratory director since 2005.

Dr. Beqaj served as a technical director and was part of the initial management team for several well-known laboratories in the clinical lab industry including PathGroup, Nashville, TN; DCL Medical Laboratories, Indianapolis, IN, and Pathology, Inc, Torrance, CA. He is currently serving as off-side CLIA laboratory director for BioCorp Clinical Laboratory, Whittier, CA and Health360 Labs, Garden Grove, CA.

Dr. Beqaj received his Ph.D. in Pathology from Wayne State University Medical School, Detroit, Michigan. He performed his post-doctoral fellowship at Abbott Laboratories from 2001-2003 and with Children’s Hospital and Northwestern University from 2003-2005.

Dr. Beqaj has taught in several academic institutions and has published numerous medical textbook chapters and journal articles. He has served as a principal investigator in clinical trials for several well-known pharmaceutical and diagnostic companies such as Roche HPV Athena, Merck HPV vaccine, BD vaginitis panel, Roche (Vantana) CINtec® Histology clinical trials, and has presented various scientific clinical abstracts and presentations.

He is a member of several medical and scientific associations including the Association of Molecular Pathology, American Association of Clinical Chemistry and the Pan Am Society for Clinical Virology. He has served on a number of clinical laboratory regulatory and scientific committees, and has assisted several laboratories and physicians as a Clinical Laboratory Consultant.

Rodney Cotton, MBA

Moleculera Labs Board Member

Rodney Cotton, MBA

Rodney Cotton, MBA is an entrepreneurial thought leader in the pharmaceutical/biotech industry who is known for his holistic perspective, bias for action in the face of challenges, and commitment to agile processes.

Rod is an independent director for Orchard Software, a private equity-backed health technology company owned by Francisco Partners; an advisory board member to Flo2 Ventures, a venture capital-backed healthcare and health equity accelerator; and a member of the board of directors and three board committees (Audit, Compliance & Finance; Governance & Equity; and Quality of Care) for Community Health Network.

He built a successful career at Roche spanning more than two decades and culminating in the role of SVP, Head of Strategy & Transformation, and Chief of Staff to the CEO for Roche Diagnostics, the North American headquarters of the world’s largest ($17B) diagnostics company.

While at Roche, Rod led key enterprise initiatives, such as milestone corporate communications, health equity coalitions, the US/Roche Group audit, and global/US acquisition integrations. With 40+ years of experience, he drove the financial turnaround and cultural transformation of four global healthcare companies, led teams of up to 280 total reports, managed P&L of more than $1 billion, and served as a key member of the senior leadership team executing the most significant restructuring of the company in two decades.

In the face of the COVID-19 pandemic, Rod and his team at Roche accelerated six ground breaking products in 11 months, including the first launch of the market’s most accurate and in demand molecular diagnostic test. He also solved extraordinary challenges of product scarcity, supply chain, product allocation, and logistics to achieve accelerated global sourcing and self manufacturing in line with testing guidelines.

A frequent public speaker on health equity and other topics, Rod was named one of the Most Influential Black Executives in Corporate America by Savoy Magazine and one of the Top Blacks in Healthcare by BlackDoctor.org. He also received The Sagamore of the Wabash Award, one of the highest Indiana State honors, bestowed by Indiana Governor Eric J. Holcomb.

Rod holds an M.B.A. from California State University, Dominguez Hills, an M.S. in Strategic Management from the University of Southern California, and a B.A. in Biological Sciences & Technology from the University of California at Santa Barbara.